AN INCLUSIVE COMMUNITY FOR PATIENTS AND PROVIDERS AROUND
Rare and Immuno-Heme Disorders and the Education & Research Surrounding Them
NEXT EVENTS
April is Primary Immunodeficiency Awareness Month
Read for Rare
04/01-04/30
Primary immunodeficiency (PI) diseases are a group of more than 250 rare, chronic disorders that affect how the body’s immune system works.
Genetic Testing can help diagnose our PI Warriors. Donate to our Genetic Testing Fund to help support patients in need of testing.
Book Fair
Earning books for patients at institutions across the nation. A fun, healthy competition to see which Institution raises the most books for their patients.
powered by Usborne Books & More
Our mission is to support the education and research around rare immunologic disorders to increase early diagnoses and save lives.
Ways To Get Involved
Due to COVID19 our 2020 in person events are cancelled. We have come up with some clever virtual ways to give. Join us in creating an event to help support our cause.
Host a Book Party
Sign up to host a book party online. Earn books with every order to donate to patients. There are hostess benefits as well. Click to learn more.
Live Virtual Events
Are you musically inclined or have a special talent? Perform on a live stream while earning donations to contribute to a fund of your choice.
Virtual 5k
Our most recent Virtual 5k earned $9,300 that went towards the purchase of genetic testing for patients in need. Help us organize our next event or participate for fun.