AN INCLUSIVE COMMUNITY FOR PATIENTS AND PROVIDERS AROUND

Rare and Immuno-Heme Disorders and the Education & Research Surrounding Them

EVENTS
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Racing for Rare
September 18-19, 2021
2nd Annual Racing for the Rare Virtual 5k is now LIVE!

Register Today
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2021 NICER Virtual Symposium 
On Thursday, 9/23 patients and families are encouraged to join round table discussions and education breakout sessions with NICER members, patient advocates and industry partners. 

FREE event for patients & families

Register Today

Read for Rare book fair was a huge success! See you next year in April!

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Ways To Get Involved

Due to COVID19 our 2020 in person events are cancelled. We have come up with some clever virtual ways to give. Join us in creating an event to help support our cause.

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Host a Book Party

Sign up to host a book party online. Earn books with every order to donate to patients. There are hostess benefits as well. Click to learn more.

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Live Virtual Events

Are you musically inclined or have a special talent? Perform on a live stream while earning donations to contribute to a fund of your choice.

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Virtual 5k

Our most recent Virtual 5k earned $9,300 that went towards the purchase of genetic testing for patients in need. Help us organize our next event or participate for fun.