AN INCLUSIVE COMMUNITY FOR PATIENTS AND PROVIDERS AROUND

Rare and Immuno-Heme Disorders and the Education & Research Surrounding Them

EVENTS

Visit with Santa & Mrs. Claus
Tuesday, December 7 6:30-8pm EST
Zoom Meeting - 5 minutes timeslot per family

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Ways To Get Involved

Due to COVID19 our 2020 in person events are cancelled. We have come up with some clever virtual ways to give. Join us in creating an event to help support our cause.

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Host a Book Party

Sign up to host a book party online. Earn books with every order to donate to patients. There are hostess benefits as well. Click to learn more.

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Live Virtual Events

Are you musically inclined or have a special talent? Perform on a live stream while earning donations to contribute to a fund of your choice.

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Virtual 5k

Our most recent Virtual 5k earned $9,300 that went towards the purchase of genetic testing for patients in need. Help us organize our next event or participate for fun.