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Wed, Jan 18

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Zoom Meeting

Patient Advocate Summit

For patient advocates within the immuno-heme community.

Registration is closed
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Patient Advocate Summit
Patient Advocate Summit

Time & Location

Jan 18, 2023, 12:00 PM – 4:00 PM EST

Zoom Meeting

Guests

About the event

Please take a moment to complete the pre-meeting survey: https://forms.gle/EfuYT7uN7GUL9nQV6

Schedule: (subject to change)

12:00-12:15 Opening Remarks

  • Welcome
  • Review of the day

12:15-12:35 Introductions

  • Everyone on call a chance to introduce themselves

12:35-1:35 Engaging and Strengthening the Immuno-Heme Community

  • Dr. Kelly Walkovich & Dr. James Connelly introduce NICER
  • New Programs launching 2023
  • NICER Resources available to patient advocates & patients

1:35-2:30 Engaging Patients in Research

  • Patient Reported Outcomes
  • Patient Forum

2:30 - 2:40 BREAK

2:40 - 3:50 Round-Table Working Session

  • Action Plans
  • Educational Materials 

3:50 - 4:00 Closing Remarks

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