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Patient Advocate Summit
Patient Advocate Summit

Wed, Jan 18

|

Zoom Meeting

Patient Advocate Summit

For patient advocates within the immuno-heme community.

Registration is closed
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Time & Location

Jan 18, 2023, 12:00 PM – 4:00 PM EST

Zoom Meeting

Guests

About the event

Please take a moment to complete the pre-meeting survey: https://forms.gle/EfuYT7uN7GUL9nQV6

Schedule: (subject to change)

12:00-12:15 Opening Remarks

  • Welcome
  • Review of the day

12:15-12:35 Introductions

  • Everyone on call a chance to introduce themselves

12:35-1:35 Engaging and Strengthening the Immuno-Heme Community

  • Dr. Kelly Walkovich & Dr. James Connelly introduce NICER
  • New Programs launching 2023
  • NICER Resources available to patient advocates & patients

1:35-2:30 Engaging Patients in Research

  • Patient Reported Outcomes
  • Patient Forum

2:30 - 2:40 BREAK

2:40 - 3:50 Round-Table Working Session

  • Action Plans
  • Educational Materials 

3:50 - 4:00 Closing Remarks

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ABOUT US

Early diagnoses save lives. We provide funding for genetic testing, to support the education of physicians in identifying and researching treatment, and to improve the patient experience.

ADDRESS

586-804-1632

​

Race For Immunology

PO Box 158

​24875 Novi Rd

Novi, MI 48376

 

info@raceforimmunology.org

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