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Race for Immunology is a 501(c)(3) and a Guide Star Registered Charity. EIN: 84-3255029
Wed, Jan 18
|Zoom Meeting
Patient Advocate Summit
For patient advocates within the immuno-heme community.
Registration is closed
See other eventsTime & Location
Jan 18, 2023, 12:00 PM – 4:00 PM EST
Zoom Meeting
Guests
About the event
Please take a moment to complete the pre-meeting survey: https://forms.gle/EfuYT7uN7GUL9nQV6
Schedule: (subject to change)
12:00-12:15 Opening Remarks
- Welcome
- Review of the day
12:15-12:35 Introductions
- Everyone on call a chance to introduce themselves
12:35-1:35 Engaging and Strengthening the Immuno-Heme Community
- Dr. Kelly Walkovich & Dr. James Connelly introduce NICER
- New Programs launching 2023
- NICER Resources available to patient advocates & patients
1:35-2:30 Engaging Patients in Research
- Patient Reported Outcomes
- Patient Forum
2:30 - 2:40 BREAK
2:40 - 3:50 Round-Table Working Session
- Action Plans
- Educational Materials
3:50 - 4:00 Closing Remarks
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