WAYS TO GET INVOLVED
For collaboration opportunities or sponsorships please email
HOST A PARTY
We love partying with a purpose. Host a book party powered by Usborne Books. With every purchase free books are earned for patients at participating hospitals and infusion centers.
Let's have an open conversation. It's so open to have open real honest conversation about caregiving, patient life, struggles we as a community face. Sharing our stories, finding others to relate to and find ways to cope and make change. Chat with our founder, members and special guests.
Partnering with companies generously donating profits from their products purchased.
Sponsorship opportunities available. Help sponsor various events, activities or programs focused around patients and families affected by rare and life threatening disorders.
For more information
Please contact our founder, Evelyn Argirokastritis at
The photo to the left is a picture of Elias Argirokastritis, Evelyn's son. He is the inspiration and motivation behind Race For Immunology. Elias was diagnosed with Nuclear factor-κB essential modulator (NEMO) at 7 months old.